CRASLNa3Sud

Cancer Registry ASLNa3Sud...

Description

Overview

Acronym

CRASLNa3Sud

Name

Cancer Registry ASLNa3Sud

Type
  • Population registry
  • Cancer registry
Keywords

mortality, incidence, cancer

Website

https://gecoopendata.registrotumorinapoli3sud.it/web/incidenza.php?lang=en

Lead organisation

Istituto per l'endocrinologia e l'oncologia

Date established

2008-01-01

Start data collection

2008-01-01

Population

Number of participants

1100000

Countries
  • Italy
Population age groups
  • All ages
Population entry
  • Immigration
  • Disease diagnosis
Population disease
  • II Neoplasms

Datasets

List of datasets for this resource...

Contents

Areas of information
  • Unique identifier
Languages
  • Italian
Record trigger

hospital discharge,specialist encounter, dispensation of a medicinal product, mortality registry, death certificate, and pathology reports

Linkage

Linkage possibility

true

Linkage description

Yes, Data base of personal detail and sanitary data

Access

Informed consent
  • Not required
Access identifiable data

No

Access subject details

false

Audit possible

true

Standard operating procedures

true

Biospecimen access

false

Governance details

https://www.registrotumorinapoli3sud.it/it/component/finder/search?q=governance&Itemid=107

Approval for publication

false

Updates

Preservation

true

Refresh period
  • December
DateLast refresh

2022-12-31

Quality

Qualification

true

Qualifications description

The Registry respect the quality standard reported F. Bray, D.M. Parkin, Evaluation of data quality in the cancer registry: Principles and methods. Part I: Comparability, validity and timeliness & Part II. Completeness, European Journal of Cancer 45 (2009) 747-764. Procedure established by IARC and ENCR

Access for validation

true

Quality validation frequency

Yearly

Quality validation methods

validation is performed by tool suggested by ENCR (JRC-ENCR Quality Check Software, https://www.encr.eu/tools-for-registries) and IARC ( IACR CHECK Program, http://www.iacr.com.fr/index.php?option=com_content&view=category&layout=blog&id=68&Itemid=445

Correction methods

Application of the checks of the adopted by the software

standards

Cdms other

CDMS are the ones adopted by the Cancer registry within the IARC and ENCR circuit

information

Informed consent type

No consent

Funding sources

Funding by own institution

collaborations

Networks

European Open Science Cloud for Cancer (EOSC4Cancer)